Any parent might have reacted the same way as did Ross and Mindy Deutsch when their 6-year-old son, Rory, came to them complaining of aches and pains in his arm.

Rory had just participated in a tennis activity camp and his parents figured the aching was due to the tennis workout. So, they went about their lives in the Chicago area.

But the next day, Rory was having trouble moving his right hand as he sat in his dad’s lap at the computer: His hand just wouldn’t work.

Then, it was his left hand that suddenly went limp, and when he tried to curl his fingers into a ball, he couldn’t. What’s more, Rory was unable to even move his wrist unless he also raised up his arm.

In their attempt to deal with Rory’s diagnosis of a terminal pediatric brain stem tumor,  the family ultimately followed a vision they had to honor Rory’s legacy forever: They set up the Rory David Deutsch Foundation with a mission to not only eradicate pediatric brain tumors, but to attack other ravaging childhood afflictions; this, while helping families cope with such tragedies.

To further promote pediatric blood and cancer research, this non-profit organization is attempting to bring these long-term endeavors into the public awareness.

Specifically, the foundation is receiving funding for such research for brain stem gliomas and other childhood diseases at the Lurie Children’s Hospital of Chicago, as well as the Preston Robert Tisch Brain Tumor Center at Duke University in North Carolina.

Such endowed programs will serve the foundation’s directive admirably with its simple petition calling for awareness: “Small Planet: Kids Making a Difference.”

Truly, everyone can be a part of making Rory’s legacy live on. Contact us to learn more about the mission and how you can donate online today.

 

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