This is Rory: Science buff. Book lover. Nintendo junkie. Movie fan.
Victim of a brain stem tumor.
Seven-year-old Rory died of Diffuse Intrinsic Pontine Glioma (DIPG), a type of pediatric brain tumor. His courage and optimisim in the face of inevitable death was an inspiration to all who knew him. During his illness, Rory had access to the very best medical treatment. Unfortunately, Rory’s type of brain tumor grew within the brain stem itself and was not surgically accessible. Standard chemotherapy and radiation therapy did not offer a cure. Even top specialists in brain stem gliomas (DIPG), working out of one of the finest pediatric hospitals in the country, could not save his life.
When Rory passed away, his family and friends established the Rory David Deutsch Foundation as a living tribute to the warm-hearted boy who touched so many in his short life. The foundation is dedicated to supporting advances in pediatric brain tumor research to benefit children like Rory afflicted with this fatal disease.